Our goal is to return each one of our heart patients to as normal a life as possible. That means getting them home with their families as safely as possible. Studies have shown that being surrounded by family, friends and the familiarity of home can help a child recover better.
When a child is well enough to go home, the Home Monitoring Program at Cook Children's Heart Center monitors patients who have a shunt-dependent blood flow and complex congenital heart anatomy during the period between staged cardiac surgeries. The program transitions patients with complex congenital heart disease from inpatient to home and helps detect problems before they become urgent life-threatening situations. This keeps emergency visits to a minimum and allows instead for clinic evaluation or direct hospital admission.
The program begins with the hospital discharge process. Our Home Monitoring Program Nurse Clinician Coordinator facilitates the arrangements for home care and provides supportive individualized education to each family. Each family is given individualized "When to call" parameters as well as 24/7 contact phone numbers. The program's nurse coordinator keeps close contact with each family and remains available for assistance. Should any concern or problem arise, early intervention is promptly initiated.
Brinley, age 2, was enrolled in the Home Monitoring Program between surgeries to treat tricuspid atresia and transposition of the great artery with ventricular septal defect.
Referred to the Home Monitoring Program
If your child has been referred to the home monitoring program at Cook Children’s and you have questions or concerns, please call Cook Children’s Heart Center at 682-885-2140.