Hearts and Souls - A family support group for patients
with congenital heart disease (CHD)
An estimated 20,000 to 25,000 babies are born each year with varying degrees of CHD. In most cases, a cause for the cardiac abnormality cannot be determined. There are many types of congenital heart defects. The defects result from failure of the infant's heart or major blood vessels near the heart to develop normally.
Hearts and Souls is a support group for parents of children with congenital heart defects. This parent-led group provides a way for parents to talk one-on-one with each other, sharing their experiences, concerns and questions. Through collaboration with the medical center, there are sometimes guest speakers such as CV nurses, ICU staff, O.R. nurses, CV surgeons, cardiologists or Child Life staff to answer questions parents may have related to CV surgery and the care of their child.
Meetings are held the 2nd Tuesday of every month at
Cook Children's Medical Center at 7 p.m., in one of the pavilion classrooms (in the basement under Starbucks). Children are welcome at the meetings; we can also have Child Life available for older children and volunteers to help with younger children. Any children attending must be free from fever, vomiting, diarrhea, cold symptoms and skin rashes.
To become a member or to find out more information, email or mail your info to the following:
Cook Children's Medical Center
801 Seventh Ave.
Fort Worth, Texas 76104
We're here to help.
If your child has been diagnosed, you probably have lots of questions. We can help. For resources, education or more information on support, click here. If you would like to schedule an appointment, refer a patient or speak to our staff, please call our offices at 682-885-2140.