Neurofibromatosis Family Support Group
The Neurofibromatosis (NF) Family Support Group is designed for patients (ages 0-18), their parents or caregivers, as well as siblings of all ages to attend. Dinner is provided. For children under the age of 5, sitters will be available.
Group meetings will be held quarterly from 5:30-7:30 p.m. in classrooms on the lower level of the Medical Center Pavilion. There will be “Break-out” sessions where parents and school age children will meet separately with their groups.
2013 NF Family Support Group meeting dates
- Thursday, June 13, 2013
- Thursday, October 10, 2013
- Thursday, December 12, 2013 - (Holiday party - mark your calendars!)
Address
Cook Children’s Medical Center
801 Seventh Avenue
Fort Worth, Texas 76104
682-885-4000
Parking for patients, families and visitors is available in the South Garage at Terrell Avenue and Seventh Avenue.
Parking for parents of patients is free. Parking for other family members and visitors is $1 per hour.
Handicap access to the medical center is available from the first and third floor parking garage.
Facts about NF
- NF involves the uncontrolled growth of tumors along the nerves anywhere in the body, internal and external
- NF can occur at any time throughout an individual’s life
- NF is the most common neurological disorder caused by a single gene
- Every hour 3 people are born with NF
- NF affects 1 out of every 3,000 people worldwide
- NF equally affects people of all gender, races and ethnic origins
- 50% of those with NF will inherit the disorder from a parent and approximately 50% will have no family history of NF
- Individuals with NF have a 50% chance of passing the disorder to his or her child
- Currently there is no cure, long-term treatments or any preventions for NF
Educational resources
For info or to RSVP – call 972.868.7944 or email texasnf@texasnf.org.
