Sign In
Cook Children's
Patient Portal

Cardiac High Acuity Monitoring Program (CHAMP)

Thanks to the CHAMP program, babies born with single ventricle heart defects are able to go home and be with their families while awaiting their second surgery. Watch as Hannah's parents share how it helped their family.

Appointments and referrals

phone icon
Call 682-885-2140

The CHAMP® (Cardiac High Acuity Monitoring Program) makes it possible for children with single ventricle heart defects to be monitored from the comfort of their own home by our Cardiology team through a digital application. This monitoring is most commonly done from the time of hospital discharge from your child's stage one surgery, until they undergo their second stage operation; this is known as the "inter-stage" period.

The application was developed and implemented by the Ward Family Heart Center team at Children's Mercy Kansas City in 2014, this technology is now utilized by 10 other hospital organizations. We were fortunate enough to be able to join this collaborative in June 2018, since that time Cook Children's heart team has monitored over 60 babies through this application with great success.

Once enrolled in the CHAMP application you will enter daily information about your child such as oxygen saturations, heart rates, food intake and daily weights. This information is directly accessible to your child's cardiology team at all times. Baseline data is set specifically for your child. If the numbers you enter go above or below those baselines, your child's cardiology team is immediately notified, and will determine if your child needs to be brought in for a visit.

What to know

Commonly monitored heart defects include:

  • Hypoplastic Left Heart Syndrome
  • Pulmonary atresia
  • Hypoplastic Right Heart Syndrome
  • Severe Pulmonary Stenosis
  • Double Outlet Right Ventricle
  • *Or any other heart condition that requires a cardiac shunt to be placed as the child's primary source of pulmonary blood flow.

Having a digital platform allows parents to share valuable information about their child with the cardiology team in real time. With the use of this real time data it provides our team the ability to identify subtle changes with the patients and intervene earlier to prevent more serious complications that these patients may have without intervention.

Additional benefits include:

  • 24/7 monitoring and feedback of your child's vital signs
  • Real time notifications and alerts are sent to your care team if abnormal vitals are entered in to the application.
  • Videos – families have the ability to send a video of their baby if they have any concerns. This allows us to triage their child without them coming in to the hospital.
  • Multi-team member collaboration- with the CHAMP application, all of our Cook Children's cardiologists have access to this home monitoring data as well as our dieticians and clinic nurses. This means that any member of the Cardiology team that the patient family encounters along their journey has the ability to see the patient's data without parents having to remember this information.
  • Reduced costs – CHAMP has allowed families and their team of medical professionals to monitor their baby at home, rather than being readmitted to the hospital for examination or treatments, which can yield excessive costs.

CHAMP is available in the App Store as a free download.

Cook Childrens Heart Center team will provide you with log in information for the downloadable application or has the ability to provide you with a Microsoft tablet if you do not have a smart cellular phone.

The data you enter will include:

  • Intake – how much your baby eats each day
  • Outputs
  • Vital signs – oxygen levels and heart rates are collected
  • Daily weight
  • Video – we ask for a weekly video to be sent for review. We may also ask you to send additional videos if there is a specific concern.

If data is entered that is out of our expected range, this is considered a "Red Flag". A Red Flag text message will be automatically generated and sent to our home monitoring team. When this message is received a member of the team will contact parents to discuss the abnormal value.
*It is important for families to call the heart center at 682-885-2140 if they are concerned about their child or notice an abnormal vital sign value even when enrolled in the CHAMP program.

You'll find helpful information in the CHAMP app home caregiver instruction guide. And, of course, you can always contact us with questions or if you need assistance.

View guide

Contact us

*It is important for families to call the heart center at 682-885-2140 if they are concerned about their child or notice an abnormal vital sign value even when enrolled in the CHAMP program.

While you are in the hospital

Before your baby is discharged home from the hospital after his/her initial surgery, our team will educate you on everything you need to know in order to take your baby home safely. You will follow a "Journey Board" with distinct goals to meet prior to discharge.

Some of these include:

  • Understanding your babies heart defect
  • Knowing how to use your home equipment including: pulse ox, infant weigh scale, feeding supplies, and CHAMP application
  • Cardiopulmonary Resuscitation: CPR

As a final step just prior to discharge both parents will be given the opportunity to "room-in" with their child for 24-48 hours. During this time parents are responsible for all cares, medications, vital sign checks and feedings. This provides the parents the opportunity to care for their child independently but also have staff available to aide and answer questions as they arise before transitioning home.

Once you are home

Once you are discharged home and active on the CHAMP application and home monitoring system you will be asked to enter data each day. This includes:

  • Vital signs 2 times per day: this includes oxygen saturation and heart rate
  • Total volumes of feeds taken in a 24 hour period
  • Number of diapers and or vomits
  • Weight, 1 time per day
  • Video, this is taken one time per week or more frequently if there is parental concern or Red Flag

During the interstage period, your child may need care and evaluation by other specialists. We work closely with other specialists as well as with your pediatrician and cardiologist to provide the best care for your child, and to coordinate appoinments if possible. About one month after your child's stage II (Glenn) surgery, they will graduate from the CHAMP program.

Please contact our team at 682-885-2140 if you observe the following symptoms:

  • Any behavior or bodily change that worries you
  • Temperature over 101 degrees F
  • Does not gain an average of 20 grams/day over 7 days
  • Increased work of breathing or stopping to breath during feeding
  • Feeding difficulty, increased sweating during feeds, or excessive spitting
  • Vomiting or diarrhea (more than three episodes in 24 hours)
  • Irritability, won't calm or decreased response to you
  • Low oxygen saturations (less than 72%)
  • Fewer than four wet diapers per day
  • Three days of weight loss
  • Arrhythmia
  • Bloody stools

We're here to help

We have devoted nurses who monitor our CHAMP babies each and every day. They work in collaboration with the cardiology nurse practitioners and cardiologists. Please do not hesitate to contact us if you have any questions or concerns.

Appointments and referrals

If you have any questions or would like to be referred to Cook Children's Heart Center, please call our team 682-885-2140.