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Congenital Hyperinsulinism International Family Conference

Congenital Hyperinsulinism International (CHI) and Cook Children's invite you to the 2018 Congenital Hyperinsulinism Family Conference in Fort Worth, Texas. This is your opportunity to hear from world-renowned physicians and researchers who treat children with congenital hyperinsulinism (HI), and to meet and share experiences with other families that have children with HI. The conference will include the following and more:

  • A meet and greet Friday evening
  • A review of current treatment options
  • Speed dating with the specialists
  • A presentation on understanding your genetic report
  • A session on coping with the stress of parenting a child with chronic health issues
  • Update on investigational medications and congenital hyperinsulinism research
  • Histories: Families share their experiences of living with HI
  • Learning about managing HI at school
  • Sunday breakfast session

Conference faculty

The conference faculty will be made up of members of the renowned Cook Children's Hyperinsulinism Center, CHI patient advocates and other world leaders in the field of HI. The Cook Children's faculty will include:

  • Paul Thornton, M.D., Medical Director, Endocrine and Diabetes program and Hyperinsulinism Center
  • Jonathan Nedrelow, M.D., Associate Medical Director, Neonatology
  • John Uffman, M.D., Pediatric Surgeon
  • Lisa Truong, CPNP, Nurse Practitioner
  • Dana Shafir, Ph.D., Clinical Therapist
  • Ryan Murphy, LCSW, Social Worker
  • Katie Kennedy, MS, RD, LD, CDE, Dietician
  • Kathy O'Bryan, MS, RD, LD, Dietician
  • Courtney Reynolds, MPH, CPH Research Coordinator

Guest faculty will include:

  • Diva De León, M.D., Medical Director, Hyperinsulinism Center, Children's Hospital of Philadelphia
  • Charles Stanley, M.D., Founder, Hyperinsulinism Center, Children's Hospital of Philadelphia
  • Pratik Shah, M.D., Ph.D., Consultant, Hyperinsulinism Centre, Great Ormond Street Hospital, London, England
  • Klaus Mohnike, M.D., Pediatric Endocrinologist, Otto von Guericke University Magdeburg, Germany
  • Dian Tallis, Ed.D., Director of Elementary Education and Student Support Services, Imlay City Schools, Detroit
  • Davelyn Hood, M.D., MBA, President, Board of Directors, Congenital Hyperinsulinism International
  • Julie Raskin, MA, Executive Director, Congenital Hyperinsulinism International

For the kids

There will be volunteer babysitters at the conference for children with HI and their siblings. The babysitting will be in adjoining rooms. Children will join their parents for snacks and meals, and parents will be responsible for all medical care. Parents should also be ready to pitch in, if necessary. If you are interested in babysitting services, please register by June 1. Teens and young adults are welcome at the conference.


The conference will be held at the Hilton Garden Inn Fort Worth Medical Center Hotel, conveniently located near the Fort Worth Stockyards and Fort Worth Zoo.

The hotel is only 30 minutes from the Dallas/Fort Worth International Airport (DFW) and Dallas Love Field Airport (DAL). You can reserve rooms from a link on the CHI Family Conference webpage.


Join us beginning in the evening of Friday, July 27 for the meet and greet from 7-9 p.m. The conference will end at noon on Sunday, July 29.


The registration for the conference is $50 per adult and teenager, which includes program registration, the meet and greet Friday event, continental breakfast, lunch and dinner Saturday and a working breakfast on Sunday. The registration for children 3-12 years old is $25 and includes the conference meals. Children under 3 years old are free. There is also a family rate of $150 for families of four or more.

Attendance is limited to the first 150 people, so don't delay in sending in your completed registration form.