Seizures in Dravet syndrome are difficult to control, but can be reduced by anticonvulsant drugs. A ketogenic diet, high in fats and low in carbohydrates, also may be beneficial.
As children with Dravet syndrome get older, their decline in cognitive function stabilizes, and in many, it improves slightly. However, most teenagers with Dravet syndrome are dependent on caregivers.
The degree of cognitive impairment appears to correlate with the frequency of seizures. For this reason, your child's treatment plan will focus on controlling the number of seizures your child has and their severity.
Depending on your child's particular diagnosis, antiepileptic, or anticonvulsant medications, will be prescribed to prevent, or at least reduce, seizures. For some children with a history of prolonged seizures (seizures episodes that last for longer periods of time) or status epilepticus "rescue" medications are prescribed to stop seizures in progress.
Since Dravet syndrome can interfere with your child's development and cognitive skills, your doctor will also recommend physical and occupational therapy. Developmental delays typically appear within the first four years of life. Treating developmental issues early helps to maintain a better quality of life for your child, and your family.
Because Dravet syndrome can be challenging for the family and caregivers, our therapists work closely with your whole family so that you can help to encourage your child at home. We will also work with educators and other caregivers involved in your child's daily routine.
Cook Children's understands kids and families and we offer a variety of support services to help make your journey easier to navigate. For that reason your care team may include:
- Neurologists
- Epileptologists
- Dravet syndrome specialists
- Neurosurgeon
- Neurodiagnosticians
- Nurse practitioner
- Patient navigator
- Child Life specialists
- Social workers
You'll also find a strong support network for every member of the family.