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2018 Annual Report

Cook Children's Hematology and Oncology

Hematology and Oncology Report


When life gets complicated, you want one thing ... the best.

  • Groundbreaking treatment options
  • Innovative research
  • Trail-blazing clinical trials
  • Emotional support

As a parent, learning that your child has cancer or a blood disorder is one of life's most frightening moments. The top priority is finding the best care for your child, and ours is delivering it. That's a big promise, and we mean it.

Hematology and Oncology Totals

Neuroblastoma Program

Neuroblastoma Program

The power of MIBG therapy

Depend on Cook Children's for treatment few others can offer – like an innovative way to deliver targeted therapy to kids with cancer. MIBG therapy is part of a clinical research trial that delivers targeted radiation directly to cancer cells.

MIBG is more than a medicine. This therapy gives hope to children with neuroblastoma. Children receiving this therapy stay in a lead-lined suite connected to a family room, designed to minimize radiation exposure to the family and staff caring for the child. Cook Children's created the first MIBG facility in the Southwest to help bring care closer to home for patient families.

The power of MIBG therapy totals

Leukemia and Lymphoma Program

Cook Children's Hematology and Oncology Center provides advanced clinical care to all patients, thanks to access to the most current national trials and evidence-based, supportive and experimental therapies. As a key collaborator with the nation's leading pediatric research organizations, our team is on a dedicated pursuit for a cure. And we won't stop until we find a way to make childhood simple and cancer-free, now and in the future.

Hematology and Oncology Report

Neuro-Oncology Program

Neuro-Oncology Program

Cook Children's Neuro-Oncology Program combines the professional services of both oncology and neurosciences to give children and adolescents with central nervous system tumors access to an experienced team of caregivers. This team uses the most modern technology and clinical trial-based, evidentiary medicine to improve patients' health. While our extraordinary doctors, nurses and technology deliver groundbreaking treatments, we never forget that it all comes down to the one child that matters most: yours.

Neuro-Oncology Program Totals

Solid Tumor Program

Solid Tumor Program

Pediatric solid tumors account for approximately 40 percent of childhood cancers. As active members of the Children's Oncology Group, Cook Children's oncologists collaborate with other leading pediatric cancer centers to offer our patients the most promising evidence-based treatments available. For very rare tumors, treatment is individualized with the expertise of our whole team, in addition to consultation with additional experts throughout the country.

Solid Tumor Totals

Adolescent and Young Adult Cancer Program (AYA)

Adolescent and Young Adult Cancer

Navigating the teen and early adult years is challenging enough; add cancer to the mix and suddenly the road feels long and lonely. AYA patients face these obstacles every day. We are constantly in awe of the amazing dignity, grace and humor they bring to their cancer journeys; much of which is spent right here at Cook Children's Medical Center. Because teens diagnosed with cancer have unique needs, Cook Children's Adolescent and Young Adult (AYA) Program provides patients with their own age-appropriate "home."

Bone Marrow and Stem Cell Transplant Program

Since 1986, our Bone Marrow and Stem Cell Transplant Program has performed more than 1,000 transplants in children with cancer, blood disorders or inherited diseases. That's what makes this program one of the most diverse and experienced pediatric transplant programs in the Southwest. Cook Children's provides life-saving stem cell transplants for a variety of diseases in patients. Outcomes are improved through our multi-disciplinary team approach and continuous quality improvement.

Bone Marrow and Stem Cell Transplant

Watch video: Cook Children's Bone Marrow and Stem Cell Transplant Program

Hematology Program

Hematology Report

From routine checkups to innovative blood disorder treatments, everything we do is designed to make kids and their parents feel better. At Cook Children's, we treat children from infancy through young adulthood with a broad range of complex blood disorders and diseases. We understand the many types of blood disorders and diseases that affect kids, as well as the unique requirements for treating conditions in continuously developing bodies. We treat hematology conditions including von Willebrand disease, sickle cell, hemophilia, stroke and thrombosis, bone marrow failure syndrome, anemia, neutropenia and thrombocytopenia.

Hematology Totals

Listen to our Physician Perspectives podcasts to hear about our participation in advanced research and treatments in Hematology:

Hemophilia – Timothy McCavit, M.D.
Sickle Cell Disease – Clarissa Johnson, M.D.

Life After Cancer Program (LACP)

Life After Cancer Program

Cook Children's Life After Cancer Program (LACP) is a comprehensive cancer survivor program dedicated to address the many late effects which children, adolescents and young adults may experience as a result of cancer treatment. The focus is to ensure that cancer survivors experience appropriate monitoring and follow-up, relevant to their original diagnosis and therapy. The ultimate goal is to help these patients become independent young adults, able to advocate for their own health care. The program makes referrals for survivorship follow-up to several specialties, including Cardiology, Endocrinology, Neuropsychology, Neurology, Surgery, Immunology and Psychiatry.

Each year, Cook Children's LACP hosts a family retreat at Camp O'Hana and provides survivorship care in our specialty clinics across Texas. The team is proud to collaborate with the Nursing Program at Texas Christian University and medical students at University of North Texas Health Science Center.

PROJECTS:

  • Continued to accrue patients that use Passport for Care which allows them to see their individualized treatment plan and recommended follow-up guidelines.
  • Participated in Camp O'Hana, a weekend family retreat geared toward supporting the unmet needs of childhood cancer survivors and their family members.
  • Continued efforts on behalf of LACP participation in the Childhood Cancer Survivor Study (CCSS).
  • Community transition efforts for our most complex survivors to ensure continuity of care and a successful transition.
  • Five multidisciplinary LACP Clinics: Bone Marrow Transplant (BMT), Neuro-Oncology, Neuroblastoma, Retinoblastoma and Endocrine.
  • Continue to provide survivorship care in outlying clinics (Abilene, San Angelo, Midland, Waco and Grapevine.)

January – December 2018

Stroke and Thrombosis Program

Stroke and Thrombosis Program

People rarely think of children as being at risk for stroke, but strokes can happen to people of all ages. For children, strokes are often related to bleeding and clotting disorders. The stroke and thrombosis team at Cook Children's has an outstanding track record in helping patients to recover and to regain as much of their mental and motor skills as possible. This team has extensive knowledge of the types of disorders and issues that can cause stroke.

Stroke and Thrombosis Totals

Childhood Cancer Awareness Month

Though childhood cancer has a high survival rate, it receives less funding for research in comparison to adult cancers. So each year in September – Childhood Cancer Awareness Month – Cook Children's Hematology and Oncology Center team engages in a month-long effort called #erasekidcancer to honor patients, as well as those who care for them, and raise awareness about the need for more cancer research. For four consecutive years, our goal has been to engage the community to raise awareness about what Cook Children's is doing to help #erasekidcancer through research. Each year, the community comes together with generous gifts and social media engagement showing support for the amazing work doctors, nurses, researchers and staff members do to help patient families every day.

Child cancer video

Child cancer totals

Watch video: A Tale of Two Daughters by Cook Children's Hematology and Oncology Center

Research

Hematology and Oncology Research Report

As an active research facility, Cook Children's is at the forefront of treatments for kids from prenatal through early adulthood. This lets us work closely with each patient and their families to look at the options and advanced care – from genetics to stem cell transplants to targeted therapies – that otherwise might not be available to them.

As a key collaborator with the nation's leading pediatric research organizations, our team offers the best available treatments and contributes to the search for a cure.

We have also collaborated with several recognized research institutions including St. Jude Children's Research Hospital®, Texas Children's Hospital and other high-performing academic institutions.

Not every cancer or blood disorder requires treatment through a current clinical trial. In fact, there are now many cases that we can treat and even cure with broad scope solutions, but those available treatments exist because of ongoing research. For the children who are diagnosed with cancers and blood disorders that are rare or challenging, research often provides the best chance of recovery. That's why we are involved in research and a continued pursuit of a cure for each and every child.

Active clinical research

TOTAL ENROLLMENTS ON RESEARCH TRIALS IN 2018: 506

OPEN
TRIALS

ONCOLOGY
STUDIES

ONCOLOGY
ENROLLMENTS

HEMATOLOGY
STUDIES

HEMATOLOGY
ENROLLMENTS

Treatment

48

103

9

7

Registry/ Biology

23

245

7

40

Supportive

2

10

0

0

Long-term follow-up

3

4

0

0

Observational

2

2

1

0

TOTALS

78

364

17

47

January – December 2018

Nursing

Nursing image

Magnet designation

Cook Children's Medical Center is ranked in the top 1 percent of the nation's hospitals, receiving Magnet® designation for three consecutive terms, in nursing quality and excellence. It has a distinguished international reputation for providing extraordinary care and achieving positive outcomes for Hematology and Oncology patients. Our nurses are at the heart of everything we do, providing the very best care to our patients day in and day out.

We are proud to celebrate the many achievements of our nurses and share their poster and podium presentations and publications.

Download presentations and publications

Nursing Report

Dog Therapy: Ralph

Dog Therapy: Ralph

quote

If you're wondering how therapy dogs help patients at Cook Children's you're in luck. I happen to be a patient here ... Why I think therapy dogs should be here: kids can miss their pets at home. They can be anxious about being the hospital, or they can be in pain, or just need some cheering up."
– Patient quote

quote

Family Advisory Council (FAC)

Family Advisory Council report

Patient and Family centered care is an approach to the planning, delivery and evaluation of health care that is grounded in the recognition that families play a vital role in the health and well-being of infants, children, and adolescents. At Cook Children's, each department has their own family advisory council (FAC). This mutually beneficial partnership has led to the creation of the following projects this past year:

PROJECTS:

  • An "end of treatment bell" was installed for both inpatient and outpatient to celebrate this occasion.
  • The book "Oh the Places You Will Go" was shared with patients at key milestones during treatment (such as a birthday, graduation or end of treatment).
  • "Top 13 Things" – handouts were placed in all the rooms for parents by parents to assist with their needs.
  • Large towels continued to be donated and given out to each family during their first admission.
  • To help parents know who and what to ask, we added job descriptions for social workers, Child Life specialists, chaplains and charge nurses on the private parent Facebook group. 
  • Parents attended our 2018 Stem Cell Transplant Workshop to answer nurses' questions and give parental perspectives of the transplant journey.
  • The Parent Liaison Program continued with trained parent volunteers who rounded on inpatient families and provided encouragement and connection to available resources.

January - December 2018

Bereavement Program

  • 250+ attendees at remembrance ceremony
  • 37 family engagements
  • 35 one-year anniversary notes sent
  • 15 personalized birthday cards sent
  • 270 phone calls/emails sent
  • 100+ articles sent to bereaved families on grief and holidays

PROJECTS:

  • In 2018, Cook Children's partnered with "A Memory Grows Bereavement Retreat" and provided scholarships for four families.
  • The staff was involved in making ceramic hearts for each bereavement package sent to families.
  • A professional photographer captured memories for the families of three terminal patients.

January – December 2018

Cook Children's Bereavement Program

Camps for Kids

While children with cancer and blood disorders often survive their disease, they still face many unique challenges. Children who live with cancer or blood disorders may find it difficult to try new things or relate to other children, but our camp program helps them overcome that.

Camps for kids

Each camp with number of campers

Camp totals

Thank you

Thank you for your interest in the Cook Children's Hematology and Oncology Center. If you would like information about upcoming conferences or new advancements in pediatric hematology and oncology research, we invite you to submit your email here and we will share updates with you.

Sign up

If you wish to support Cook Children's Hematology and Oncology Center, your gift will make a difference in providing children access to the most advanced treatments and therapies. To find out how you can support patients and programs at Cook Children's, visit cookchildrenspromise.org or call 682-885-4105. Or, click the button below to make a donation now. Our sincere thanks for your support.

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